Email: info@cdfri.org
ABOUT
ABOUT US
TRANSFORMING SICKLE CELL OUTCOMES
At Crescent Dream Foundation, we believe that helping those affected by sickle cell disease goes far beyond the efforts of a single organization, it takes an entire community working together. Our mission is to unite patients, families, healthcare providers, researchers, and advocates to create lasting change.
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We listen closely to individuals and families living with sickle cell disease to better understand the real challenges they face each day. These lived experiences help inform our advocacy, strengthen community support, and elevate the conversations that lead to more responsive care and meaningful policy progress.
Our focus is on empowerment, practical support, and above all cultivating hope. By connecting individuals and families, sharing resources, and turning conversations into action, we work to reduce barriers to care and strengthen pathways toward a healthier future
Together, through advocacy, partnership, and community engagement, we can help transform lives one conversation, one act of support, and one person at a time..
FOUNDERS MESSAGE
The Crescent Dream Foundation was established with a deep understanding of the resilience required to navigate life with sickle cell disease. Our mission is to provide hope, expand access to education, and cultivate a supportive community for individuals and families impacted by this condition.
Crescent Dream reflects our shared belief that even in life’s most challenging moments, there is always a light guiding us toward brighter days. Together with our community, partners, and advocates, we remain committed to uplifting voices, empowering families, and advancing lasting change for those affected by sickle cell disease.
A NATIONAL INITIATIVE
The Crescent Dream Foundation is committed to understanding and addressing the real experiences of individuals and families living with sickle cell disease. Through ongoing engagement with the community, we gain insight into the challenges surrounding care, access, and daily life allowing us to advocate for stronger support systems and more responsive services.
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Each year, we contribute our findings to national partners, including the CDC, providing scientific evidence that supports stronger healthcare practices, defines the health profile of people living with SCD, and tracks changes in outcomes over time.
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Our ultimate goal is to transform this knowledge into meaningful action—improving quality of life, increasing life expectancy, and building a healthier future for the sickle cell community.
TOPICS WE ADDRESS
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Health Outcomes
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Study how individuals living with sickle cell disease access and use healthcare services.
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Identify common and recurring health challenges faced by people with SCD.
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Preventive Care Services
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• Support conversations and partnerships that advance thoughtful, informed care for people living with sickle cell disease across all age groups.
• Raise awareness around preventive health measures that contribute to safer, healthier futures for children and adults affected by sickle cell disease.
Access to Care
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Break down barriers during the critical transition from pediatric to adult care.
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Expand access to specialized healthcare programs for adults aged 21 and older living with SCD.
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Capacity Building & Education
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Share findings and raise awareness about sickle cell disease within communities.
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Promote programs and services that provide resources, outreach, and guidance for patients, families, and healthcare providers.
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Partner with stakeholders to develop policies that reduce health disparities and create a more equitable future for the SCD community.
