ABOUT

ABOUT US

TRANSFORMING SICKLE CELL OUTCOMES

At Crescent Dream Foundation, we believe that helping those affected by sickle cell disease goes far beyond the efforts of a single organization — it takes an entire community working together. Our mission is to unite patients, families, healthcare providers, researchers, and advocates to create lasting change.

We collect and analyze critical health data to better understand the real challenges faced by individuals living with sickle cell disease. This information helps drive improved healthcare services, influence policy reforms, and guide the development of new and more effective treatments.

We are here in your community, working to inspire small victories that lead to big, lasting impacts. Our focus is on empowerment, practical solutions, and—above all—spreading hope. By connecting people, sharing knowledge, and driving action through data, we aim to break down barriers to care and create pathways for better health outcomes. Together, we can transform lives, one data point, one conversation, and one person at a time.

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FOUNDERS MESSAGE

“The Crescent Dream Foundation was born from my personal journey with sickle cell and a deep understanding of the resilience it requires. Our mission is to provide hope, education, and community for those impacted by this disease. Crescent Dream reflects our belief that even in darkness, there's always a light pointing toward better days. Thank you for walking with us as we uplift, empower, and advocate for lasting change. ”

A NATIONAL INITIATIVE

The Crescent Dream Foundation collects and analyzes vital health data on individuals living with sickle cell disease (SCD) to better understand long-term trends in diagnosis, treatment, and access to care across the United States. By turning data into actionable insights, we help shape policies and healthcare standards that improve and extend the lives of those affected by SCD.

Each year, we contribute our findings to national partners, including the CDC, providing scientific evidence that supports stronger healthcare practices, defines the health profile of people living with SCD, and tracks changes in outcomes over time.

Our ultimate goal is to transform this knowledge into meaningful action—improving quality of life, increasing life expectancy, and building a healthier future for the sickle cell community.

TOPICS WE ADDRESS

Health Outcomes

Study how individuals living with sickle cell disease access and use healthcare services.
Identify common and recurring health challenges faced by people with SCD.

Preventive Care Services

Assess the use of clinical guidelines and best practices for people with SCD across all age groups.
Monitor vaccination rates among both children and adults with SCD to improve protection against preventable illnesses.

Access to Care

Break down barriers during the critical transition from pediatric to adult care.
Expand access to specialized healthcare programs for adults aged 21 and older living with SCD.

Capacity Building & Education

Share findings and raise awareness about sickle cell disease within communities.
Promote programs and services that provide resources, outreach, and guidance for patients, families, and healthcare providers.
Partner with stakeholders to develop policies that reduce health disparities and create a more equitable future for the SCD community.

EVERY DOLLAR MAKES A DIFFERENCE

Creating a Brighter Future for the Sickle Cell Community.

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